Teresa
10/8/2013
8:51:07 AM | Hi my fellow Aussies,
Just a thought, as we now are a growing number here. Would you be interested in perhaps having our own conference call at some stage? Perhaps one or two people in the US (not sure when Mel will be well enough, but maybe it could be with John B and someone like Peter) could all get together to exchange information and ask questions. I have now participated in two conference calls in the US, which has been great and really made me feel like I am part of that community. I know that cost can be restrictive and am just wondering whether anyone here is Australia would be interested in having a local one. We have a few unique issues, like a lack of medical support for our disease, testing issues etc.
Mel, John B and Peter, hey, perhaps you don't think this would be a good idea - that's okay too. You're 'the man' Mel and can really only advice us on this.
Please let us know if you think this could be helpful.
Regards
Teresa |
