Gale
12/10/2015
4:27:48 AM | Hi Teresa, thanks for making contact. I would be happy to communicate so would like to exchange email addresses when Mel can send them through to us. (thank you Mel!)
I am so happy to hear that you are just about living 'normally'. That's very encouraging indeed. Does 'normal' mean symptom free but still aware you have a condition, or are you further along towards being completely healed? Do you still follow the protocol?
I am still having some ups & downs but in general I would say I am improving. I am still feeling the occasional crawling & stinging but only mild, but my hair is still moving on its own which is what is really freaking me out mentally. I think it may have improved slightly too, or it could be that it's just because I can't feel it so much because I wear it back most days now and every day I am applying some treatments (as mentioned by others in these threads). My hair is colour treated (foils\streaks) and I think these "things" like the treated part of my hair. I looked at a hair that was moving under the microscope and saw fibres inside a bulb on the end and fibres also wrapped around the shaft of the hair. So now I am making sure I brush & use a fine tooth comb every day when applying the treatment.I also know now why my face was having so many lesions and this is because the moving hair gravitates towards my face & I believe it is infecting it. Pulling my hair back daily has helped me to heal the lesions I have and not get so many new ones. Hooray!
My other lesions are healing well and the scars are very slowly changing from a deep red to a more normal colour, which is great news!! It's summer and I don't want to spend another one covered up & hidden away!
I still haven't started the MMS... i want to do more research and be prepared. I am a little scared to be honest but gaining knowledge should help that.
Look forward to exchanging emails.
Gale
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