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How I Cured Morgellons
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8/11/2022 10:18:53 AM |
Dear Amber, I’m so sorry you’re dealing with this. The first stages are the darkest because of not knowing what’s going on. I'm pretty close to being well now, but I have been in the valley of the shadow of darkness like everyone else who has found their way to Mel's site, so I understand and deeply empathize with where you are now. I hope you don't mind if I share some thoughts with you. I think if you read these thoughts and put the suggestions into action, it will find it extremely helpful. By the way…these aren’t all my ideas (although I’ve added a few of my own). The information below is a condensation of all I’ve learned on the site and what I’ve found has helped me the most. Here are some important things to know: 1. This is not like any other disease you've ever had or heard of. It won't help to go to doctors and tell them your symptoms. They have been trained not to believe this is a real thing. I am lucky because I finally found a very informed doctor who attends the international Lyme conferences every year and who has shared the research with me that finds Morgellons to be a manifestation of Lyme. She is wonderful and understanding, but all of the prescriptions she gave me at first did not work. The only thing that has worked was to do the natural approach extremely diligently over an extended period of time. I do go to her periodically to have a general check up and to have lab work done. I had some other doctors before her who did not understand and deemed this to be something in my head...like I wanted to go through something like this...oh please! These types of medical professionals are extremely destructive to people suffering from this disease. They don't mean to be...they think they are doing the right thing, but this is a time in your life you need to listen to your body and your own common sense and not give your power away to someone who really does not understand. This is hard because all of us have been conditioned to believe that doctors are gods and that they know best. It was very difficult for me to let this go...but I had to because I wasn't getting well. 2. The support you need...and don't minimize this...is going to come from others who are in the same boat. This means Mel's community. There are some wonderful people in this community who meet regularly through weekend conference calls. I know the time difference is an issue, but it's important enough for your emotional well-being to try to figure out a way to get there and participate. In the meantime, I urge you to go back and listen to past conference calls that you can access on the site. When I was so sick, I'd listen to the past conference calls repeatedly on my phone. I had my phone by me in everything I did all day, and I listened. At that time, I had a long commute to work and I'd listen. I'd listen to some calls multiple times. I had a spiral notebook and would write down things I learned from the calls. This was very helpful to me and gave me a sense of control. We naturally want to reach out to family and friends for support, but the medical community has muddied the waters for all of us. The fact that this disease has been deemed delusional has made it difficult for those suffering and for family members / friends who could be helpful. This is going to take a shift in your thinking, but it's something we've all had to do. You can do it! 3. Mel tells me you are only thirty...this is a REAL benefit to you in your healing. Older people do get well (I'm 66 and very close to being well), but it's not as easy for someone older. The big thing to understand is that this is a process. In short you are having to double down and rid your body of toxins and pathogens by a variety of measures you will learn on Mel's site (basically the "Sum of the Parts") and this is not an easy process. We get this disease when we are already weakened, and by the time we realize something is seriously wrong and what it is, we are so stressed out and riddled with brain fog that most of us just get paralyzed by fear. 4. Let me assure you that if you do everything Mel tells you to do, you will get better. Please take the time to read and listen to the stories of the people who got well. Look for the common thread of those who have been successful. These people became laser focused and went for it with everything they had over an extended length of time. My biggest hero on this site is Terry. Please read her posts under "Terry's Tribute." She is well and living her life and she is not alone. Others are too. 5. This brings me to a very very important part. The people who got well were able to apply a difficult protocol over an extended period of time without letting their heads play games with them. That means they were able to somehow find the mental strength not to give into despair. Despair will lead you to miss doses, eat things you're not supposed to, stay up late in extreme anxiety, and worst of all, produce cortisol which will truly make the disease dig in and flourish in your body. To make a finer point on this, there's actually another person out there with a website and a protocol who suggests heavy duty psychotropic drugs to deal with the anxiety because it's very difficult to make headway toward health if you are sabotaging yourself by flooding your body with cortisol. That may work for some, but personally, I find that approach extreme and scary (with some exceptions)…and not in line with the natural approach that’s finally worked for me and so many others. 6. Here's how to handle the anxiety so you can get to where you want to go which is back to health. First of all, stay as focused on what Mel's site has to offer as you possibly can. Read all you can...make posts...reach out...listen to past conference calls...attend conference calls. Then...don't fault yourself for being a worrier. People who are not worriers will tell you to just "calm down." Telling someone this has never helped anyone anywhere ever. However...having a plan to address it does help. One thing you can do is to change the environment. I asked Mel if you worked and I believe he told me no. If you can afford to stay home during this healing time, then jump for joy because being able to focus on getting well is a huge benefit. It's not easy when you still have to work (I do) but it's definitely do-able. I'm doing it...it just takes more time. Working is kind of a double edged sword though. On one hand it's hard to get your work done when you feel bad, and hard to take all the protocol and get rest. On the other hand it's SO good to go to work to forget about the disease. Not thinking about it 24/7 is also a huge benefit. So...start by changing the environment, and first of all I mean step away from your devices where you're probably still frantically trying to find answers to this illness. That will only make things worse. Do use your devices to have past conference calls constantly playing when you're doing things around the house or driving. Anxiety is cyclical. That means it's like getting on a merry go round and not being able to get off. Anxiety is actually driven by neurotransmitters...this means it's a chemical reaction that you can't just command to stop. However, there are ways to deal with it. One quick way to stop the cycle is to get outside and start walking the minute you feel a seriously scary thought coming on. Another way to do it is to have a schedule and a routine. Believe (because it's true) that every single day you adhere to your schedule it is putting you one day closer to getting your life back. Within your schedule, spend time cooking, walking, meditating, and creating a serene environment. This next one is super important...find things that take your mind off of the illness. You’ll occasionally read what some might think of as a lot of unrelated and / or silly stuff on the site. Don’t let that fool you…Mel includes these types of things for a reason…and that is to provide moments to step away from the anxiety. So..if you have a hobby you can do that doesn't wear you out...then do it. Get organized and focus on that. Another easy thing to do (this is my thing) is to find Netflix, Prime, etc. series to watch. Some of them have a LOT of episodes. Get into that and know it is actually for your healing. Cortisol will keep you away from your goal, so you must find things to get it under control. I'm obsessed with certain channels on Youtube. I love furniture flipping channels, homesteading channels, cooking channels, and (ok...I know this is weird) but I love watching people clean and organize their houses. You probably have some favorites too. Get your head out of the disease and into something else...use your devices for this...not for extending worry by "researching" the disease. There's too much scary stuff out there and it doesn't help. The only thing that has helped (and I mean has helped a lot and I'm almost well) was to do it the hard way which is the "Sum of the Parts." Your doctors might try to put you on heavy duty psychotropic drugs. I'm not a doctor, but I do know a bit about this. I am not giving you medical advice…because I’m not a doctor…but…what I'm about to tell you is something I finally did myself when I was at the beginning of this disease and scared out of my mind. There’s a drug called Welbutrin. Welbutrin (generic is Buproprion) was initially made to help people stop smoking. Smoking is an addiction, and Welbutrin does something chemically in the brain to stop the neurotransmitter driven cyclical loop of the addiction. By the same token, anxiety operates exactly like an addiction because it becomes a cyclical loop driven by neurotransmitters in the brain, thereby putting you on a merry go round that is difficult to escape without a plan. I went to my doctor and told him (not my Lyme doc at that time) that I was having difficulty with anxiety and asked for Welbutrin. If you do this, you do NOT have to go into detail about why and how you're sick with a disease that you know you have but that the doctors have been trained to believe is just delusional. Don't put yourself in that position. Allow yourself to go through the grieving process that the medical community has let you down and move past it into taking care of yourself. I got stuck on the unfairness of this for a long time. It upset me that those who were supposed to help me (that I was paying to help me) were not only not helping me, they were harming me with their opinions that I was delusional. This was before I finally found my wonderful doctor who was more informed. However...I digress. Don't open yourself up to being hurt by expecting your doctor to understand. Just tell him or her that you have been having anxiety and ask for Welbutrin. I have taken it in the past and have no problems with it, and it did not interfere with my healing from this disease like other prescriptions I’d taken. It is nothing like the other psychotropic drugs out there that can really make you feel weird and interfere with your mental processes. If you decide to take it, you might not even need to be on it for too long. I stayed on it initially for around a year, and then I went back to it a couple of times over the next three years or so for short periods of time (jumping on and off of it is not recommended by doctors, but hey…Morgellons…we do what we have to). What I needed at that time...what we all needed when we were where you are ...drowning in fear...is a means to get off the worry merry go round so we can focus on getting well. Welburtin did this for me. Amber...you can do this. You can get well. Get informed. Read Mel's site...and continue with your coaching. Do your own research on Welbutrin and then decide for yourself. But...as someone who has taken it, I can tell you it helped me tremendously with anxiety and it is NOT one of those heavy duty psychotropic drugs. I’ve found it to cause minimal side effects. The only thing for me was a slow down in word retrieval after being on it for a while, but…for me…this was very minimal considering the benefit. My prayers are with you. This is difficult, but once you get a set routine and get the anxiety under control, you can dig in and defeat this dragon. Once you do that (and you will if you decide to with all your heart) then the rest of your life will open up to you in ways you could never imagine. You will face life with a courage and force you'd have never had if not for going through what you're in now. You will be steel forged by fire and you will be undefeatable. So pick up your sword and go after this. You will succeed...just follow the path that's been set before you. Much love, Karen | |||
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