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5/28/2019 9:19:10 AM |
This is from Karen...another one of the teachers on this site. Actually...I've been out of the classroom for several years, but I still work in education. There's not much I can say that Jamie, Maria, Tracy, and Ruth Ann haven't already said very well except to say they are all exactly right. I wasted a lot of time wanting to believe there was a "magic bullet" out there. You'd mentioned you have an appointment with an infectious disease doctor. One would think that would be the gold standard of medical care for our very strange symptoms. However, not one person, including myself has ever been helped by an infectious disease doctor. I was patronized, and insulted when I went to one and told I needed to see a psychiatrist. I'd have been thrilled to death if this was all in my head and I'd have been running to get the big bad psychotropic drugs they love to prescribe, but I had enough sense to know it wasn't that easy. I've never had a history of hypochondria and had too many things to do to waste time being sick for even a minute. No way I'd have cooked this up in my head...to what end? Who would pretend to have these weird symptoms? I may have been looking for a magic bullet, but I did have enough sense to believe in myself and what I was observing in my body. The infectious disease doc, the PCP, the dermatologist, etc. etc. etc. didn't provide any help at all. As a matter of fact, if not helping a patient, insulting them, and then charging them isn't against the law, it sure should be. I finally did find a lyme literate doc who I dearly love. I didn't make much progress with the pharmaceuticals she prescribed, but I love her because she recognized my morgellons. She also gave me a blood test to determine if I had lyme disease...I did. That was a lifesaver because it gave me something to say to others about why I was so sick. I still go to her but for blood tests only to keep track of my progress. It's also good to say to family members, etc. that you're under a doctor's care. That'll help with unwanted advice. I'd like to share some wisdom with you I wish I'd realized when I first got this disease...it would have saved a lot of time. 1. No magic bullet. It's going to take some time. Once you accept that and get going on the "sum of the parts" you'll be that much closer to the finish line. 2. Sum of the parts...did I already say this? Yes! It's because it's so important. It's THE magic ticket. Take some time to read the Beginner's Packet...that will give you an idea of what to do. 3. Discipline...just take one day at a time. It's going to take some practice to get things ready to take to work. There are a lot of supplements...WPS (when you get on the extension protocol a couple of months down the road), and all of your food. Summer break is coming up though...and that is a perfect time for you to get really on top of everything you need to do and start the sum of the parts. It'll also give you some time to plan how you're going to get everything packed and ready for work in the fall. 4. Let go of the fear. Once you get all set up with your supplements, food, and clean environment, etc., then do anything you can to avoid fear. Fear will generate cortizol and that feeds the disease. I do anything to escape my thoughts if I can. Netflix is my BFF with Youtube and Amazon Prime running a close second. Come to the conference calls and find a buddy to communicate with. That will help you more than you can imagine...because the person you'll be talking to will completely understand what is all but unexplainable to anyone else. There's a real peace in that...plus...it's always great to share tips and ideas. Relax in the knowledge that there is a long history of many people getting well who have used this protocol. I looked everywhere and had found what you did...the message that you can't get well. That is inaccurate. Evidence supports the fact that many have regained their health over the ten plus year history of this site. I'm in the 95% club and working toward 100%. Mine has been slow...and that's because I'm sometimes a little challenged with discipline...when I do what I'm supposed to do consistently, I see huge progress. The rest is up to you. YOU'RE in control...you just have to put your foot on the road and start walking. You won't be alone though...we're on the road with you and will keep you company as you head for the finish line. Love, Karen | |||
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