|
|
|
|
|
2/10/2020 10:01:50 AM |
Thank you for all the replies & encouragement I appreciate everyone who took the time to send me a nice message. I have lived my life as a hermit for the last few years hiding and isolating myself. I started having symptoms in 2014 I thought I had scabies. I went to the ER and they agreed it was scabies and they gave me permethrin. I took the medicine over and over but it was not working. I started to read online forums about how ppl can not get rid of scabies. I thought to myself this has to be resistant scabies or something, lucky me lol. I started trying anything I could like neem oil I even bathed in bleach, I have tried the horse paste, the dog dewormer medicine fenbendazole. I started taking diatomaceous earth, I even put that on my skin as a paste. I have tried Morgellons direct, the potassium iodide product on amazon. I'm sure you get the point. As I said on the conference call I went to the dermatologist they gave me two punch biopsies because the first time I guess they did not get an answer but they did not give me a diagnosis with the second one either. They gave me multiple different steroid creams to try that I just stopped using after a while because they did not work. I switched doctors and showed her some of the lesions on me, she was very concerned and made me get multiple blood tests ran and they all came back normal. At this time I knew I had Morgellons but did not dare tell her because honestly I was scared to be written off as delusional. I mentioned to her one more time that I felt like bugs were crawling under my skin and she just looked at me and shook her head. I tested her to see if she knew about it but never revealed that it was Morgellons. So I have not been back to the doctors for about a year because I know that I am pretty much on my own its a waste of time to ask them for help and it's humiliating. I also found out that it could possibly be from dental fillings I am not sure if it is true but if you search on google "Hell and Back Morgellons" an article from a man who claims he had it will pop up and he says it was from dental fillings. I went to the dentist and showed him the paper and he did not believe me and would not take out my fillings he said I need to go to the hospital for mites, so no help there. So I have to go back to the dentist soon because I do have to get some work on my teeth but it's not to take my fillings out. I am still wondering if there is a link with the dental fillings though. If anyone looks up the article on google please let me know your thoughts on this. I feel like when I wrote my story there is so much missing. I am sure you all know how dark the days can feel. Holding on is not easy sometimes you want to ask and question God why me? I know there are ppl out there who have gone through worst things. I am grateful for the small wins and for my family and this community but it is still a hard burden to carry. I am 29 years old now with no kids I choose to be single for obvious reasons and I am stagnant in my life but I have hope that things will get better for me down the line and that my life is not over even though sometimes it does feel like it. It sucks because the lesions can make you feel like you look like you are on drugs and you are not! I even have a lesion on my lip so I feel like it looks like I have herpes as well and it is just really hard especially someone who cares about their appearance as I do. It's hard but this is making me stronger because what we are going through is not for the weak! God bless you al, I missed the prayer call, I overslept, I'm Looking forward to this next weekend's calls. Have a blessed day and Thanks for listening! | ||||||
2026 © All Rights Reserved.
