Share on Facebook
Translate This Site

Enter Your Login and Password To See The Whole Website:

Create a login for $10/month. 100% of the funds go to making this community possible.

Click here if you forgot your login or password.



Riding the Wave

Return To Topics List
Original 9/27/2019 Post

Karen
9/27/2019
11:50:53 AM

Morgellons - Riding the Wave

Hello Everybody,

It’s been a while since I posted, so everyone’s eyeballs have had a chance to rest up from my uber long posts. But I’m back today and want to catch up a bit and share some thoughts.

I’m calling this thread “riding the wave” because that’s what it often feels like when you’re on the get well journey of this disease. We start out terrified...we’re out in the ocean alone in a leaking lifeboat...then we find this site and realize there’s a kind and supportive community that offers real help. Mel throws us a lifesaver and then shows us how to get set for the journey.

Our goal is to get to dry land (meaning get well) but by the time we’ve realize we need to put out an SOS, we’re pretty far out to sea. But it’s that or sink, so we cry out for help, and then we learn it’s going to take some time. If you remember when you were new, or you are now new, you know this is almost like sticker shock. HOW LONG is this going to take? For real?

Some of us (put me at the top of that list) go into serious denial and waste valuable time continuing to search for a magic bullet...but after a while, we settle in and get ready for the ride.

We buy our supplements, we get our kitchens stocked with foods we can eat, we learn about rest, and sunshine, and exercise, and losing the stress and we get hopeful! And we should be hopeful because we CAN get well. Many have, and many will.

We get set up on our new little lifeboats and then all of a sudden, a big wave comes and crashes down over us...and then maybe another and then another, and then we get so scared. What are these big waves? Well...here are some:

Extreme fatigue. This happens for a good reason...our bodies are working hard to get rid of the toxins and the pathogens. It’s hard work and it makes us tired.

Things coming out of our skin. Ok...if you’ve been around for a while, you’ll begin to understand that it’s not really PC in our community to talk about the related details. This is because (as Mel says) this disease is scary enough without the horror stories. However...this DOES happen. And it’s scary. And sometimes it hurts...a lot. But...as Mel says…”better out than in,” so this is actually a good thing. We want it gone, and some of us purge more through our skin than our digestive tracts...and it can be quite stressful.

Our families and friends don’t understand and treat us poorly. My personal “favorite” (NOT) is when those who have never experienced this “know best.” Oh the advice we receive that is so not helpful! And isn’t it interesting how invested some people get in you following their advice? But please do remember...YOU’RE the one living this. If the easy and obvious answers would have worked, you wouldn’t be here, and you wouldn’t be reading this.

We get the same poor treatment from our doctors. I pray that one day the real truth will come out and those who suffer will no longer have to endure this type of abuse, but until then...we MUST remember to use our own common sense and listen to our own truth. We know what our bodies are doing. Who in the world would make up these things? NO ONE would want to endure this. Ignoring such huge numbers of people who present with the same symptoms and saying that it’s in their heads is the real delusional thinking. That doesn’t even make sense on any level.

We keep doing what we’re supposed to day in and day out and at times, it seems like it’s not getting better. It can even seem like it’s getting worse sometimes. This happens to all of us...but just hang on to your lifeboat...you’re going to jump for joy when you wake up one morning, go about your business, and suddenly realize...wait a minute...I’m not tired...OMG...that place on my skin is so much better. I’m not writhing in bed at night with horrific skin sensations...I slept all night!

That’s how it works. If we ride the waves of this monster storm, we’ll finally get to see dry land again.

Then we’re REALLY encouraged.

That’s where I am now. Close to three years in on the protocol, and finally seeing the entire coastline. I haven’t docked my boat yet because I still have some small places on my skin in one area, but from where I was even six months ago compared to where I am now is night and day.

The scary skin issues are gone.
The night misery is gone.
The inability to sleep is gone. I lay down and sleep until I have to wake up.
The inability to gain weight is gone. Lol...too bad I’ve gone so far in the other direction...but I’m working on that issue now.
The house issues are gone. We get well, and our houses get well too.
But the BEST thing...drum roll...is…

My energy is BACK.

That was the absolute worst part for me. When I wasn’t dragging myself to work, I sat in my rocking chair in my kitchen for over two years just thinking about how much I had to do and how I couldn’t do it. At one point I had to take a leave of absence from my job for a month. I was so weak and tired that the most I could do outside of the most basic things was to take the kitchen trash out to the big outside trash can. One bag a day...and it seemed so overwhelming I’d have to plan it out and psych myself up to make the “journey.”

Now I’m working two jobs...with a long commute each way...working on my house...and so much more.

I thank God every day for this return of energy.

It took a long time though. It did not happen overnight. I also was not the most disciplined member of this community on sticking to the protocol to the letter, but when I did get tight on it, I would leap forward. The closer I get to the finish line, the faster I see the results of doing things correctly.

So...here’s the take away from this post:

If you’re new, you’re in the right place. You can get well.
It’ll take time.
Everybody gets discouraged because it spirals back after you take a leap forward.
Being disciplined is like putting an outboard motor on your sailboat. It’ll get you to dry land faster...a LOT faster.
Staying positive is absolutely key to riding these waves. Don’t get discouraged and quit right before the waves clear and you see dry land.

These are things I’ve had to tell myself over the years to get where I am now.

And this has helped quite a bit...but nothing has helped as much as the encouragement I’ve gotten from Mel. The conference calls are invaluable. I’ve been having to hyper focus on some things in my life right now and have missed the calls the last couple of months, but I know the recorded calls are right there on this site to listen to afterward. The prayer calls are an emotional life saver. They provide a safe place to be ourselves. Everyone on these calls is going through the same thing and understands. We don’t have to pretend with our community, and this is a huge stress release. Praying together is beyond helpful. It is THE glue that holds it all together.

I’m not alone in saying I don’t know what I’d have done without Mel. His coaching has literally saved my life. He’s talked me off the ledge a number of times when the fear has overwhelmed me to the point of emotional shut down. I was scared and upset the other day about an unrelated issue, and he took the time to read me a Bible verse about not losing my confidence. That was so helpful...and such a kind thing to do. He always offers practical advice and what he says works. And thank God for him...I’m almost well.

If there was no Mel...I’d be in a living hell. Please forgive my pointed words, but it’s the truth. Mel gives us the road map and then stays with us every step of the way. Thank you Mel for giving so much of yourself to do the conference call...to have started the foundation...to make coaching available...and to show up every day.

Hold tightly my fellow warriors...we’ll all get there if we just keep the faith.

Love,

Karen


Scroll to the Bottom to Comment
Responses (Newest First)

Timothy
11/4/2019
9:00:08 AM

Morgellons - Riding the Wave


Thank you so much for sharing Karen and I'm glad it resolved itself quickly for you. That bill, wow!

I'll up the dose to 6 for the next few days to give it a blast, 4 is working well. Not sure if it is shingles as there is no pain like there was last time, but applying coconut oil/ silver msm cream and the monolaurin seems to help.

Lots of love,

Timothy


Karen
10/31/2019
3:21:22 PM

Morgellons - Riding the Wave

Hi Timothy,

Yes...I had what my doctor determined to be shingles in September of 2017. It never came through the skin...it was all under, but it was extremely painful. It took about a week, a trip to the emergency room, and visits to two doctors to finally figure it out. In the process, Mel contacted John B. who advised doubling up on the monolaurin. If I remember correctly, he had me take two tablets three times a day. I really don't remember the exact amount he suggested, but maybe John is reading this and can weigh in.

In any case, I finally got it diagnosed a couple of days after I'd started the monolaurin and by the time I went to the third doctor, I'd already gotten significantly better. I went ahead and took the prescription the doctor gave me along with it, but my sense of it is I probably could have done without the prescription and just had the monolaurin.

My out of pocket cost for the trip to the emergency room where they couldn't figure it even with all kinds of tests was over SEVENTEEN HUNDRED DOLLARS. Additionally, I had to wait hours and hours, and hang out in waiting rooms filled with people as sick as or sicker than I was.

In my job, we renew our benefits at this time of year and they begin in January of the following year. I'm in the process of choosing packages and it occurs to me that the prices increase every year at about the same rate as the services decline.

So...what to do? One could get hurt and require a doctor for a broken bone, etc., so doing without insurance would be ridiculous. However...my hope is to continue to build my health with Logos plus healthy eating for preventative measures and to avoid as much damage control care (what I call how our medical system approaches care) as possible.

Really Timothy...it was amazing how quickly the monolaurin worked. Give it a try, and I hope you get relief asap.

Love,

Karen



There are 11 posts in this thread. Login in the top right of this page to read them all and join the discussion. 100% of the funds go to making this community possible. If you don't have a login, please register and join us.