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How I Cured Morgellons
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11/11/2017 2:40:00 AM | Hi Ruth, Hi Laura, Hi Karen.. Thank you all for your replies, I'm really grateful that you read my post when it was so long. Thanks Ruth, I'm so sorry about what you've had to go through too, and delighted that you're doing so much better now. Your story is genuinely heroic in my eyes. I am genuinely overwhelmed by the smallest things at the moment, very much including the things you mentioned. Just treading water from day to day is an achievement. I can definitely believe that God brought me here also, as I am at the end of my tether. I really feel like I hold it together quite well in most ways, all things considered, but symptoms and morale pretty much rock bottom. I'd say more the prior causing the latter but who knows sometimes. Another positive regarding the concerns you mentioned about doing everything from the UK, which you and others on here have done a lot to alleviate. I'd noticed my increasing struggle to concentrate on reading, probably even before most other symptoms and particularly taking all the stuff about this in, really does make my head spin, but I'm going to read and re-read, and if I have to make changes one by one, hopefully I will get in a position where I feel like I can do the protocol. I've been doing well with diet in some ways. I really miss pasta, potatoes and bread. I miss tea with milk and sugar and having chocolate sometimes. But I've been resisting them. The soup I mostly eat doesn't have potatoes in it but it does have carrots. Getting off pineapple juice as well now is going to be hard but if I know it needs to be done then I will. Smoking is something that worries me on top of everything else, as last time I was on the lemon water, lettuce and cucumber fast, I quit smoking for it, and it was the most demoralising part on top of everything else, even after many weeks I just wanted to be less tense and smoking just centres me sometimes. I do try to meditate and regulate my breathing and other things. Something else that worries me are some of the variables, for example about some people being ok with carrots and not others. My hair is pretty consistently unbearable, also on my forehead/face, the fibres along with the lesions they cause and pain in all the follicles, and so I worry about whether I would be able to tell or not. I've put coconut oil and some tea tree oil on my hair and face tonight and have the feeling of having walked through spider webs more than usual but I don't seem to ever notice having a reaction to a specific thing, as I've read many others have. I'm going to get back on the lemon water and stick to distilled water and green tea beyond that, and continue to read on here and keep trying to implement things as I go, and get so that I feel like I know what all the different things are, and how I will get them and take them, and when, especially considering my infrequent insomnia and often affected sleep pattern. It's also a blessing that you've all replied and so I can also count on well-informed advice, and feel that I can ask specific questions. Hopefully I will talk to Mel at some point and get your email, or in fact, as you say, email him and ask for it. I was unsure about how that worked and whether I could email him or you never know when people are getting bombarded. It's so kind of you to offer your advice via email too. God Bless. Hope you are well and continuing to improve! Thanks Laura, I definitely agree about one day at a time, that has been the only way I've been able to manage for a while. It's sometimes hard not to fast forward to a time where I'm feeling like my hair is my own and I don't have lesions and scars on my face, but visualising that is only natural I guess, with the understanding that I have to do what I need to do to enable that to happen. I have to admit that with the trauma of it all, I've found that it's left me slightly paranoid about me being the one that can't get better and what if it doesn't work for me etc. Again, all things considered, I don't think that would make a person delusional in the circumstances, and it's nice to communicate with others that won't think I am. I've definitely been decided for a little while that I need to get on the protocol, I just want to understand it (overstand it?) as much as possible first and be able to approach it wholeheartedly. I need to think about the environment thing as well, as I have a lot of things in a small space and it gets difficult to clean well. I am working myself towards clearing everything to redecorate so hopefully I can make a fresh start knowing how important it is. Is this Kleen Green easy to get or do I need to order it? Do I need a lot of it? I will definitely stick to this site. It has taken a long time to find the right place but I felt straight away that I had found it. Thank you, and you're right, I am trying my best to keep focused and continue to have hope and faith. Hope you are doing well at present and God Bless. Thanks Karen, I definitely completely agree with you about the designation of delusion thing. The way it's dismissed reminds me of if the doctors were all just putting their fingers in their ears and shouting 'la la la'. Just to cover all bases - they either, 1: know what it is but for some reason deny existence of any problem - or, 2: don't know what it is, genuinely can't see any issues or get any leads from them to look into. If you write off the first scenario, then you're left with the question of why they can't admit that they don't know, rather than have to validate their allknowingness by insisting there's no problem and so it having to be delusions. And if a doctor can't see the problem, aren't they supposed to explore different avenues to at least try to get a clue? It really does make me wonder if they've either been prebriefed about these complaints and what to do about it, and they just strictly follow those guidelines without thought, based on lies from pharmaceutical corporations that they've been fed. It's not a secret who butters their bread. And if not that, then it must just be that they know it's maybe something complex and will be easier and quicker to diagnose DOP, job done, tee-off at 4... I wonder if they realise the emotional distress they cause completely rational people who are suffering, by defiantly declaring that nothing is wrong (or latterly, that they believe symptoms are real, but still writing in notes that hair growth completely normal and if insinuating it's self-inflicted by saying it will be resolved if left alone), and sending them away supposedly questioning their sanity on top of that suffering, also with little hope now of getting any help from the people with supposedly the most authority to. If anything beyond my symptoms has distressed me and been psychologically detrimental, then it has been the treatment (or lack of) by, and disillusionment with, the medical establishment. So much for 'First do no harm' but what's an oath in the twenty-first century.. My dermatologist has repeatedly told me not to do any research and let him deal with all that. But he can't see anything wrong when blatantly a lot is. Yes it would be they that appear to be delusional. It's enough to send a person mad. I had kidney stones a couple of months ago, something I'd somehow forgotten to mention, but I'd say the care I got then was fast, efficient, overall a good, competent standard. I know it's a much more cut and dry thing, but my point being that it occurred to me, that my experiences over the past 6-7 years had left me surprised at getting competent care. I'm so pleased to learn you are doing so much better and can now see light after being in a very dark place and you deserve many congratulations! Yes it certainly is a minefield at first isn't it, knowing where to look, who/what to pay attension to, where to start with remedies, healing etc. A fair bit has been spent, but thankfully most of the things I've bought, it turns out are useful and recommended here also. There's just not been much structure to some things, I've just tried different things, different times. The time spent/invested in doctors has been much more expensive in my case, unfortunately, even if not financially. I'm sure I'm only echoing many peoples' stories. Yeah, the more detailed the info on the protocol, the better, for me, I'm a bit thick and slow when it comes to things like this, so I also think that will prove helpful and I sometimes really do need things spelling out. It's also nice to not have to go through it alone, as you said, others here being, or having been, in the same boat. I will try to listen to more of the conference calls. Thanks for your encouraging words, it's been hard not to feel a bit like a victim at times, and only feeling as if I'm being seen from the outside as either a victim, or a lout by others who know even less about the situation, so it was nice to read that I came across as resilient in someone else's perspective, and not having a bad attitude. Also to know that things I have described have made sense to you. Haha, I'm glad you understand about struggling to keep the word (page?) count down as well, that's exactly what it is. I think I might have managed above, to out-digress your digression, so I can hardly be one to ever complain about that. Thank you for the warm welcome and wishing you continued successes in your recovery! Apologies for any mistakes there may be in this post, on this occasion I was too tired to read it all back. As I was typing this, I was sent a news report about facebook launching a promotional campaign encouraging its users to send them naked pictures of themselves, to help tackle cases of 'revenge porn'. The idea being, supposedly, that if anybody uploaded compromising pictures of that person in future, then a database would somehow recognise that person's 'characteristics', and block/remove the content. A short prayer for those who can't see what times we are living in. Thanks again everyone, you will all be in my thoughts and prayers. Wishing you all a good weekend |
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