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mel
5/7/2010
12:17:26 PM
| Hiya Gina H!
Welcome once again;
First let me thank you for bringing clarity regarding the two Ginas.
Whenever someone has told me in my life time that they had a problem I have always felt bad for that individual.
To me that signals a challenge that has totally become overwhelming,when this happens we are usually confused frightened and feel alone.
First let me assure you that you are not alone, that there are many wonderful people on or website who are on the road to recovery.
As far as confusion there is so much information available, that one who reads everything has to process and ingest the information which is not easy when you are suffering from morgellons.
Then you have to go back and analyze the information and decide what parts pertain to your particular symptoms.
In the last year there have been tremendous in roads in the fact that doctors are beginning to recognize morgellons as a legitimate disease, and insights in how to exactly deal with this multifaceted horrific illness.
There is more hope than ever for the morgellons sufferer.
MMS,is a very important part in my personal health restoration, but as I have always said it is the sum of the parts, not some of the parts. My protocol involes multiple parts to fight the morgellons as well as vitamins, nutrients, probiotics to help restore the immune system functions.
One also needs to know how to utilize MMS the best way when treating morgellons.
You can go to our protocol page then scroll down to the third picture, the picture shows two bottles, MMS water and 50% Citric Acid solution.
Put the curser on the picture and click.
This is a page specifically designed by the manufacturer for morgellons sufferers.
You will notice that the manufacturer suggests that MMS be taken once a day, in the evening to keep it apart from the other parts of the protocol.
We have gone from having no testing a year ago for the morgellons sufferer to having two types of testing now available which gives the morgellons sufferer options.
I recommend that everyone contact Pam at www.Morgellonsfocus.com to discuss the two types of testing made available,and she will help find a doctor who will go over test results with you.
It has taken me over an hour because I am a two finger typer to get this far along in my response to you.
There are many questions that you have asked that I have not answered yet, because some of them I am not qualified to answer.
Let me suggest that you send your phone number to my email address(mellowf@charter.net) so that I may talk with you further, and help you utilize our search engine feature which should be able to answer the balance of your questions.
As far as the cotton issue,our website has never taken a political stance.
I will tell you the story of riding through Walmart with a hand held microscope examining all the cotton shirts and sox, eventually being approached by Walmart security as I was driving the electric cart as fast as possible trying to evade any confrontation.
As I reported back in March of 2009 I did not see anything wiggle.
In closing I would like to say that I hope I have brought a little bit of HOPE into your life.
Maybe you even smile at my true and funny story.
Look forward to hearing from you through the email.
God Bless, Never give up Hope!
Mel |
Pamela mae
5/6/2010
9:40:13 PM
| Tanyha,
Please do not despair. Today is a hard day for you,tomorrow will be better.
You have found us and we have all been where you are in 1 or more days or spanse of time.
We have come so far with this disease.
People are stabilizing on mels protocol.
People are getting well.
We will journey with you on your path if you will give us a chance.
We have found Doctors now who will treat you as a person that is enduring a for 'REALs' disease and syndrome.
If you will email me I will be glad to help you find a doctor close to you.
pamela@morgellonsfocus.com
Know that we will pray for you and you are not alone.
You may also call and we can chat.
Blessings to you and I pray that you know finding this place was the first step in hope and on the journey to wellness.
Pamela Mae
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mel
5/6/2010
12:41:01 PM
| Hiya Tahnya,
Welcome.
I am glad to see that you still have your faith, which is what I believe has led you here. We all feel your frustration with your prolonged path of suffering and uncertainty, and with the appearance that everyone is winging it.
The powers that be have no interest in recognizing the problem and they have precious little to offer to help.
However, I am thankful that over the last year so much progress has been made in understanding this disease, and even more progress will be made this year.
We have endeavored to forge a repeatable process that promotes transformation in the lives of Morgellons patients; from despair and hopelessness, isolation and fear to stability and productivity.
Please read all you can here and get to know the wonderful people that you will meet. Get started with the protocol and keep us posted on your progress.
God Bless, Never give up Hope!
Mel
P.S.- "First Do No Harm" is a message we have consistently preached to all. Please use the search engine feature to familiarize yourself with the proper use of the crystals before experimenting with them. It is also a good idea to speak with a representative from the crystal company and ask them to include instructions with the order. |
GinaH
5/6/2010
1:27:41 AM
| Hello everyone from Gina Hasaproblem, - Can I get more detail on methol crystals? How much do you use for the car versus a medium sized room, maybe 12 x 12 or so? Do you add any alcohol to dissolve them or just let the heat up? I wondered about dissolving some crystals in alcohol and then adding it to the laundry. Mel, I saw you suggested adding MMS to purify laundry. Thought I saw 30 drops MMS somewhere maybe for a full load? Did you find that stray fibers left after washing with MMS were no longer moving? They seem to live through everything. I forgot about ammonia but have been using borax and oxyclean for an oxygen treatment with the laundry soap. I found the fibers were still able to move away from my tweezers (back in the days when I was squeamish and used tweezers), even after the item went through the laundry with Javex colored bleach. Gave up on bleach then.
MMS was disappointing for me as I saw no difference this was early last year though. Seems there is a timing issue around this entire experience. They're very adabtable so I rotate stuff. I used one bottle MMS, taking 15 drops in the AM and 15 at PM, so 30 drops a day. But no difference. Puzzling, as it's another O2 therapy. I still have the last bottle I bought and may have another go if you found that much improvement with it.
Seems like the consensus is this infection links more to GMO cotton,I thought it must be our food line becuz of the fluorescent agrobacterium.Maybe the combo. I noticed the fibers on Walmart's sox last year, too, ..but decided I was becoming too paranoid. Maybe not.
Recently went back on Indole 3C as it helps eliminate dead cells. For migraines and dizziness I also use Bentonite liquid clay sometimes when it seems there is a pronounced detox happening to cause additional system stress. It's said to absorb more than 20 times its weight in toxins to help eliminate faster. Big improvement for me even after one day with it just in case the headache people haven't tried it yet. I take it at night to not interfere with the nutrients. Can't wait for my order with MSN to arrive for another sulphur supplement, thanks Mr C!Bactrin does make a difference so MSN should also help.My anxiety level has decreased with use of ashwagandha (helps hypothalamus, pituitary function, so also insomnia - a powder form I get at Indian grocery for $3 but also in health food stores...more $, and St Johns Wort. I now ask the preventive medical doctor to supply me a list of these supplements on his letterhead as it can then be claimed under medical receipts section of income tax next year at least here. Maybe of interest to try for some. Strength and blessings to all.
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Tahnya
5/5/2010
11:36:28 AM
| Well hello,I've just read one page of comments and responses and I am going to try difusing with crystals. Thank you. I seem to be distraught on how many sufferers their is out there but we are all still just winging it! I've had this for one year to the month and I still dont know exactly how I recieved this horrific disabling, disfuctional, life altering and mentally crippling a.k.a. disease. What is the reason for not issuing a world, nation or state Bio-Chem emergency, its an epidemic! There are too many life duties, jobs and or responsibilites in one house hold.
I'ts just too much emotionaly n phisicaly to deal with and become our own doctors and chemist. At this rate 'everyone' will enevidably get this, since we are not even sure what or how it arrives or if it really ever goes away.
With my prayers and tears for all, sincerly Tahnya |
mel
4/10/2010
1:33:10 PM
| Hiya Susanne,
Welcome as always;
Mr C is on vacation. If memory serves me right, Mr C
decided that this information could do harm if not completely understood; therefore he deadened the link.
I hope you are feeling well.
God bless, never give up Hope!
Mel |
Susanne
4/10/2010
12:46:56 PM
| http://tinyurl.com/ygx4m2b does not pull up.
anyone?? Mr CS you there |
Susanne
4/10/2010
12:44:48 PM
| Can anybody tell me the website which Mr Common Sense is written at the beginning of this post.
It says http:tinyurl.com/ygx4m2b
But it doesnt pull up. Does anyone know the correct URL please?
thanks a mil
susanne |
Deb2
11/23/2009
9:39:46 AM
| Susanne,
Wal mart or k mart. there is one on copans road, west of federal, right by the thruway entrance. Call them first if you want. Yes, I believe they are called difusers. Yes you have to go online to order the crystals. this stuff has been on here a million times, please pay attention. also, if you are living with other people, you have a responsibility to not get them infected as well.
Get focused, pay attention and get into action. |
Susanne
11/22/2009
7:27:55 PM
| Deb 2
OK.
You are sure KMART has the diffusers? Is that what it is called if I go in the store and ask, or is there another name?
Then I would have to order the crystals online, is that the only way to order them
Debra,
The Kleen Green . . how/where do I get that product? Is the only way for that product online?
thks |
Deb2
11/22/2009
6:26:01 PM
| Susanne,
I beleive you can get a difuser at K-mart (electric). borrow someone's extension cord and difuse your car. You need to get more pro active with your situation, no one is going to do it for you and if your car is re-infecting you, no matter what you are taking internally, you will not get better.
You can do this. |
Susanne
11/22/2009
11:43:49 AM
| I agree, when I was getting my car detailed every week, thr problem stopped. But I cannot afford to get it detailed anymore..I believe the sucking of all the debris helps. I now spray it with ammonia, but that only lasts for a few days. I cannot afford to do much else right now, this disease has wiped me out financially, Thanks for your advice, I will see what doors open for me. . though most don't want this to become religious. . prayer is all I have left.
Thanks for writing |
Debra
11/22/2009
8:56:16 AM
| Susanne,
I understand your frustration and wanted to help asap.
I have not used an infuser or the crystals but I keep a spray bottle of Kleen Green in my car. I have used diatomaceous earth in my car and I get it cleaned out at least once a week. I believe at this point I am finished with this disease. These 2 things I credit highly with my recovery. |
Susanne
11/22/2009
3:40:08 AM
| Kim, or someone .. PLEASE tell me where to get a diffuser? Must it be plugged in, and how can one accomplish this in a car? (I am desperate to try this, my car is infested and they keep returning).
This is my one downfall with not getting well.
I read in an earlier post, not to use a candle in the car. . what do we use then?
I need to tackle this car, I continue to get clusters of new bites EVERY time I enter the car and every time I get better, I am getting sick .. excuse me, I am so upset with this car thing, my laundry, no control over my environment, because I live with other people .. I pray for the day when I have my own place !!! I am upset today, and venting here. |
Kim S
11/3/2009
1:22:21 PM
| You can google Mountain rose herbs and then type in menthol crystal in the search feature. I just ordered some myself and just rec'd them. I need to purchase a diffuser yet though. |
L
11/3/2009
9:12:27 AM
| I also can't get the site about the crystals and the diffuser where can I purchase them? |
Auntie M
11/2/2009
3:13:20 PM
| Hi Debra, I am not sure what you want explained. Is it about the mites? |
Debra
11/2/2009
12:00:46 PM
| Can someone explain this. I can not get this site.
Thank you! |
Robin
10/31/2009
4:24:40 PM
| good point about our differing terrains, but I am going to get some organic cotton clothes ! Thanks Auntie M. |
Auntie M
10/31/2009
3:47:11 PM
| I think I read somewhere that it's the genetically modified cotton that is also grown with pesticides that is much worse for Morgellons sufferers. I've been switching to organic cotton. It feels much better on my skin, but I have always had really sensitive skin. I wear all cotton and some fleece. As long as I wash my clothes in 1/2 cup Borax in really hot water and dry on high, I have not had a problem with my clothing or bedding. I've found when I wash any of my clothing made with synthetics, polyester for example, the hot dryer destroys them. Since some of you are requiring other additives to your laundry to get comfortable, I am wondering if we are each individually attracting different parasites, fungi, bacteria, etc. to our body terrain because the initial Morgellons organism has compromised our skin and overall immune system. And also, maybe our different blood types and genetic make up are variables, too. |
Robin
10/31/2009
12:15:56 PM
| I got the Xtreem cleaner at q-based solutions. They are into this 'mysterious mite' thing and have some good info. http://www.qbased.com/skin-parasites/index.html?crtag=Google&gclid=CMWEqvS3hJoCFQNbxwodXXq0GA
COPY and PASTE that. I tried it,it works. |
ld
10/30/2009
5:54:12 PM
| sorry folks, I meant googles. Still have the blurry vision!! |
ld
10/30/2009
5:51:59 PM
| Robin I checked the site you mentioned, very interesting! I noticed that they are not saying anything about the foods you eat and building up your immune system which I think is just as important because I am an example of getting it again if you don't keep up your immune system.
Thanks for mentioning hanging the clothes in the room for I have been trying to get back to their site to see if it was okay but didn't get around to it. She told me to read up on it and did say they may smell like mint and also to protect your eyes by wearing gooles when dealing with the stuff.
Washing clothes, I used Borax, epson Salt and ammonia, Someone mentioned about the salt affects on the washer(metal) so I am going to cut out the epson salt. I only used about a quarter cup of ammonia so I will increase that but I really want to get the Bonners. When you get back to us on where you got the Extreem Cleaner, can you also tell me where you get the Bonners?
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Kim
10/30/2009
5:20:41 PM
| Be careful when microwaving clothes, I started a small kitchen fire microwaving my under garmets, kind of embarrassing explaining to my insurance company and especially when I used to work in that department- LOL ;)! |
10/30/2009
1:19:28 PM
| I meant 5 minutes on the clothes nuking. Be prepared to lose a few things. |
Robin
10/30/2009
11:30:39 AM
| OH and if you do the menthal diffuser thing, put your clothes in the room too before washing them. Keep it going for 12 hours at least. They say 8 is the minimum. |
Robin
10/30/2009
11:29:18 AM
| OH about the laundry question. I read this: wash clothes in one cup ammonia, one cup borax, a shot of bonners and 2 shots of Xtreem cleaner. I forgot where I bought that gallon but I'll find out. Also, wear polyester clothes, and loose ones. I nuke the washed clothes in the microwave for ten minutes while they are wet. I've only burnt up a few things. I do not want this back when I get rid of it so I am literally wearing my cotton stuff and throwing it out. Disposable clothes... I want to get down to a few things poly and nukeable |
Robin
10/30/2009
10:26:11 AM
| I read this: About the menthol crystals on http://www.shanspirations.org/?p=112 on the blog 'Help! I'm being bit by something I can't see! What do I do?' I've read you need to leave them at least 8 hours. 12 better, 24 best. Plan on no using the room for a while. It also says, 'menthol does not work overnight, but if you use it for a week the results are tremendous.' |
ld
10/27/2009
7:14:43 PM
| I haven't gotten a diffuser yet but plan too!
When having to go into a room after diffusing, what about getting swimming goggles to protect your eyes |
Robin
10/25/2009
2:03:24 PM
| I'm doing the diffuser today in my mother's room, in fact. I have a ceramic bowl on a plate warmer. It melted them just right and I sense a powerful odor. Like ld said, I have it plugging in by the door so I can hold my breath and close my eyes when it is all done. Good luck all ! |
ld
10/25/2009
1:35:57 PM
| Mr. C/S I did see that on your site. Thanks for sharing.
When using the diffuser, you could set it on a timer to go on after you leave and shut off whatever time you want. Plugging it in near the door is still a good idea in case you return earlier than planned. Linda |
Kim S
10/23/2009
3:11:58 PM
| sorry, me again. Oh how much of the Bonner's peppermint soap do you put in the laundry? I have always used borax but found I still feel things with certain clothing. Thanks Guys! May God bless us and show mercy on us all! |
Kim S
10/23/2009
2:57:59 PM
| How long do you leave it, do diffuse a room or car, just as long as the crystal melt? Do you need to leave it closed up for a few hours to be effective? |
Susanne
10/22/2009
9:08:11 PM
| This is JUST wonderful to know, what a saver! .it beats putting ammonia in the car (as I have been doing now) or having to light my car on fire and buying a new one.
It is a natural potion, is it not. . the menthol crystals? suey |
Robin
10/22/2009
8:44:17 PM
| I've done it and Mr. CS is right. You can't enter the room without the eyes tearing. POTENT. Hold your breath. I put them in a ceramic bowl and then on a coffee warmer. I have the plug near the door so I can hold my breath and reach in and pull the plug and let the room cool down before I go in to air it out. Don't use a candle in the car. |
Pamela Mae
10/22/2009
4:56:15 PM
| Mr. Common Sense,
Thank you so very much. You truly are a great humanitarian .
Was nice to meet you and your family in pix:-)
Blessings,
Pamela Mae |
Susanne
10/21/2009
9:22:39 PM
| Thanks a mil !! |
Mr. Common Sense **
10/21/2009
8:43:49 PM | Copy this URL into your web browser window
http://tinyurl.com/ygx4m2b
For what it's worth, hope it can help some of you ... |
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