| | Michele
7/25/2010
10:59:33 PM
| ld~ I appreciate everything your doing to help me & others! Thank God for the adivse you & others give! I am listening!!!! Big Hug, Michele | ld
7/24/2010
9:19:36 PM
| Michele I got your message and I may have been hard on you but usually when we complain we should stop and think of those worse off and I am more greatful for what I have when I do that. I took the position that if we had some kind of diaster bigger than 9-11 than I would have to treat myself because no one would be available!!!. It is self discipline that will be a big help in overcoming this. Discipline to take the med etc. same time each day, watching the diet, READING labels and instructions, getting enough rest instead of socializing, or watching tv, getting out of bed to do exercise, taking the baths, and staying on course!!.
For those who get the testing and can afford it, there is a lady on Pam's sight who can make the cream for lesions with the natural stuff your tests says will work for you.(I know not everyone gets lesions) This lady has morgellons and has been into making creams with natural stuff even before she got morgellons. She was never able to afford the testing but she was making creams out of the stuff she thought would work on it. She was experimenting on herself and would keep trying to improve it. I don't know how much she would charge. Several of us felt that her creams helped us and that was before we all learned about the testing.
Also find that some stuff works at different stages.
For instance, some swear by the barley treatment for lesions and when I first did it, nothing, but tried it again and I felt it did help but not get rid of it completely. Some still swear by the barley but I feel again you have to keep applying it on a regular basis and too me it was too much trouble while The sulfur creams works for me as long as I apply it ALL the time. As Mel and others have noticed the lesion marks are very faint after faithful treatment.
Reading the posts you will find out what has been tried, what gives people the most relief, plus hints along the way that will help you. Having Mel's protocol is the foundation and things like the creams etc. make it more comfortable, but without the faith and hope you might give up. knowing that there are people who have overcome this should give everyone strength and knowing that you can help others.
| Michele
7/24/2010
4:29:44 PM
| ld~ where has all the love gone? :-)
Please keep in mind that I am posting from the heart.. I am sure there are others out there with larger issues??? I wish them the very best!
I was confused on how this site works..no big deal.
My post was exactly what I needed to say at that moment! The very next day I received a phone call from this wonderful man named Mel. Actually, first he left me a voice message. I felt like I had received a call from the President. I was so touched & my spirits were lifted way, way up there. I spoke with Mel and he has the sweetest southern drawl. He is a Cowboy..I am sure of it! Ok...back to reality.
Mel told me to zip it & listen. He gave me some great advise regarding my Doctor's visit this Monday and all kinds of other tips all leading back to the importance of staying on the protocol, fighting all three monsters at the same time, to include fungus, bacteria and parasites & I must plan on fighting those (3) lovely items for 15 to 18 months with the help of bactrin or whatever medication my lab testing leads me to. I also learned the importance of taking the MMS at night! I understand, as Mel explained to me that I can expect to get sick as my body heals itself. I am starting with the Bactrin Monday as it could be a few weeks before I get test results back. My diet is in for a remodel. But if the end result is improving my health then I will do it all!! I now feel the warmth from the light at the end of the tunnel. Mel, thank you for helping me. Your one very special person who I hope to know forever! Even if you tell me to zip it or was it STOP!!! You take care of yourself Mel! xoxo Michele (smiling!)
** I love you Rose, Sheila, ld and of course Pamela Mae. Heck, I love everyone on this site and anyone affected by Morgellon's and also anyone who likes Pink Floyd. | sheila
7/23/2010
11:55:15 PM
| hi michele, i understand how you feel. i have been getting worse lately ,and the parasites are more intense. i stay home in bed most of the time. this is not me at all. i miss being on the go! and living life! but mainly i have no one totalk to. ive tried many things, but i think my brain has been affected so much that i can't think right or remember what to do. my living situation makes it worse. i have to get well though before i can do anything about it. i don't know how much longer i can make it. but i'm not giving up without a fight. contact me if you need to talk to someone! sleepy sheila , | ld
7/23/2010
12:23:22 PM
| Michele, You have to realize that we are all going through this, some are even worse off than you but it is a matter of having faith so we try to help others while trying to take care of ourselves. You yourself should know how time consuming it is. Remember that God helps those who help themselves (reading all the posts will give you valuable information)
Everyone who has progressed with this disease has taken charge of their own treatment. Your lucky that your Dr. was able to help you. My regular dr that I had been seeing for years, said I was Delusional and after seeing 6 other Dr. I found a Dr. who knew nothing about M. but was willing to take me on because I was determined to get well. She still has not put a diagnoise on my records. At first she refused to prescribe bactrim for more than 30 days but the last appt. she gave me 30 days plus a refill because I have proven to her that I was doing my research by bringing in Mel's protocol, articles from Mr. Common Sense, etc.
You will get worse before you get better and since you have had it so long it will take awhile before you get symptom free.
Even though I have not had what alot of symptoms people describe, I believe them because I have had other things that people have not had. You cannot believe the pain I experience sometimes when I am having a herxheimer response (dying off) it is worse than childbirth pains and I have them quite often. I try to hang in because I know when I have these pains they are getting rid of stuff. My Dr. gave me a good detox kit to get these out of my body when I do have them dying off. (read post 4/22/09 Herxheimer Response)
Testimony for MMS, read post dated 4/16/09 titled "Opps forgot to mention this..." That is what made me believe in the MMS along with the fact that it was in Mel's protocol.
You want to talk to someone who probably has it worse than you in her whole situation, e mail Susanne who has left her e-mail address many times through out the form posts. She is a fighter and has faith!!! I have left my e-mail and even phone number for people who wanted help but I prefer that they call Pam or Mel who have had more experience with this and have done more research.
We are all praying for each other to overcome this and willing to help when we can but one has to remember that we have to cope with our problems too.
Just remember to keep the hope and faith!!
| Michele Smith
7/23/2010
5:06:09 AM
| Thank you for responding. I am so very depressed and sick. It is hard for me to rah..rah.. rah.. when I feel poisoned. Going to doc tomorrow morning. Having testing done next week. I am so fatigued and exposed to toxins === I think I am getting better then get so sick.
Thanks for your support Rose! No one else bothered to say a word to me... even on this site I feel completely isolated. But I do not care anymore. Just want to get well.
Smiles~Michele | Rose
4/20/2010
3:07:36 PM
| Love and hugs to you, Michele. As you continue Mel's protocol you will get exceedingly better. And my prayer for you is complete healing. Blessings, Rose | Michele
4/17/2010
5:51:07 PM | In case I never introduced myself.. Hi, my name is Michele. I live in the Santa Barbara area. I think I have had Morgellons for 5-6 years.
I have spoken with Pamela on the phone and she has been a GREAT HELP! THANK YOU TO MEL for providing this site to all of us and yes I will be making a donation! :-)
I few months ago I was so jacked up on getting better. But now, I am sick again, crying alot and trying to get back on track.
The good news is.... My PA has diagnosed me with Morgellons and actually wrote that diagnosis on my medical form. She has treated me on-off 5 years. I WAS ABLE TO WALK OUT OF HER OFFICE WITH MY CHIN UP! I will continue the protocol and join in on phone conference calls. I pray for strength to continue fighting for my health! Love & Hugs to you all~ michele | | |
| |
|
 |
|
