| |
Debra
10/6/2010
11:34:13 AM
| Well, I was happy to have a diagnosis that maybe could get some treatment and some respect. But a blood test for stronglyiodes antibiodies came up negative. The doctor explained to me that testing for DNA of parasites does not prove that there are 'live' parasites in the body. The DNA is there even if 1 lone dead parasite got into the system through food, etc. DNA testing does not prove infestation.
Metamextrix needs to go beyond this testing for us. They need to isolate DNA results that are similiar
amd start charting them. How much of a particular DNA is found in a sample? Also - How about a reduced rate so that we can get the testing done as much as needed to get some answers.
PS - I would like to know what research you have been doing and what your results have been. Thanks |
gettingbetterslowly
9/29/2010
1:32:10 PM
| Markus,
I'm about to be thrust into the medical mafia world due to work pressures. Do you mean this herb is good for disseminated Strongyloids? Just want to be clear that Strongyloidiasis is definitely the disseminated kind. I can't find a proven expert in Strongyloids in NJ.
Does anybody have a list? I used the Metametrix list and don't find any are under medical specialists. Will look at the alternate medicine, but my manager will have a fit!
gettingbetterslowly (?) |
9/28/2010
2:21:44 AM
| Dear gettingbetterslowly:
A very helpful remedy for strongyloidiasis is culantro leaves (Eryngium foetidum). These leaves can be obtained fresh at grocery stores in southeastern Florida, where culantro is a native species.
This folk remedy has been made into a patented drug, but that drug is not yet available in the U.S.A.
Markus |
9/27/2010
7:02:17 AM
| PS,
Just to be clear: this is not Morgellons, it is disseminated Strongyloids, the patches are not open sores, they are reddish nests that pale and then grow brighter with a little itch and crawling sensations at times.
I know a very lot about it, I'm looking for how people deal with it financially by getting medical practice and insurance involved, disability, etc. so I will be supported instead of enervating the situation by working all the time.
Your patience is appreciated. I could write a book, but I was originally trying to get to the point.
gettingbetterslowly (?)
Thanks. |
9/27/2010
6:44:26 AM
| PS,
Thanks for your reply.
At bottom where post space is:
Your Name: (optional)
Email Address: (optional)
gettingbetterslowly is how I signed.
I know conclusively I have Strongyloidiasis as I 'go' nests, have seen full grown dead (easy to ID IMHO: pointy at one end), they bite my eyes, run up and down my legs, etc. I thought I'd skip all that.
Thanks for your opinions on enemas, but I must say it is a way to get MMS to the bloodstream and has decreased numbers noticably while flushing out clumps of nests (gelatinous), a little larger form, all sizes.
I didn't see in your previous posts the answers to my questions, e.g., cost (approx. fine), obligation of health care when diagnosed, social security. This is VERY hard to beat, especially when working full time as my 4 patches on my abdomen are active and reproduction is constant.
Any help you can offer is much appreciated!
gettingbetterslowly or willitbetoolate |
ps
9/26/2010
1:29:13 AM
| To whom it may concern,
What makes you think that you have Strongyloidiasis (an human parasitic infection caused by Strongyloides)?
If you read my post in this thread (the second from the bottom) I think it will answer all your questions regarding Morgellons and Strongloides.
I noticed that you didn't post a name in the Your Name box. I know it's confusing. Forum rule number 4 says "Posts with no name will be deleted" and next to the box it has "(optional).
I see no advantage to MMS enemas and a couple of disadvantages. I don't and won't do them. IV MMS is something that should only be done by a physician trained to do them. I see no need for either regarding Morgellons.
PS |
9/25/2010
11:45:16 AM
| How much is Metametrix test? Is shows "free", but how much is it when clinician gets involved and if positively diagnosed are health plans automatically obliged to pay for clinician, test, treatment once condition is proven? I absolutely KNOW I have strongyloids (disseminated) and likely qualify for disability. Will a clinician suffice to support this? I'm on MMS (enemas are similar to intravenus). I am getting results, but I work full time and am barely making it as they bite my flesh, reduce my appetite, MMS reduces my appetite, etc. I can tell I'm getting better, but what I have CAN be fatal. What do you think and any cost estimates, references to doctors (NJ) would be appreciated. I wish you all great health.
gettingbetterslowly |
johnb
9/9/2010
11:22:49 AM
| Hi Debra,
I believe that when PS described Morgellons as a self ascribed condition, he was referring to the fact that it is still not generally accepted by mainstream medicine for what it is, so most people are forced to self ascribe the diagnosis based upon their own research and experience.
So far, it appears that Morgellons has defied being characterized by a single infection or infestation that is common to all sufferers.
PS's research presents a very compelling case for a non-helminth parasitic worm as a common source of many of the symptoms of Morgellons. Debra's physician has isolated strongyloides as the primary culprit in her case. Others point to collembola or various other parasitic or quazi-parasitic organisms.
Clearly fungal overgrowth accompanies the syndrome for most sufferers, as does heavy metal and other forms of toxicity.
Testing is helpful because it can identify what particular pathogens a person is dealing with so measures can be taken to remove those particular threats.
However, if the focus is limited to eradicating pathogens that are "dug in" to the relative safety of biofilms, a cycle of remission and reinfection with ever increasing toxicity (and prohibitive expense) is likely.
So going in with pharmaceutical guns ablazin is not necessarily the wisest course of action. As Mr. Common Sense and Mel have proven, in order to beat Morgellons long term, one must repair systemic and cellular physiology and restore integrity to the bioterrain.
The genius of Mel's protocol is that it addresses all the physiological needs of the body. It lowers the overall infection load, promotes detoxification pathways, restores nutrient absorption capabilities, erodes the integrity of biofilms, powers cellular energy systems and soothes inflammation.
We are living in a dangerous time of history. Regardless of what has invaded or will invade our bodies, these are the things that must be consistently and permanently addressed in order for us to survive. |
deb2
9/9/2010
10:47:14 AM
| Kathy,
Are you able to travel? I have a doctor that not only uses Metametrix testing, but believes Morgellons exists AND will prescribe the appropriate meds. I am not in Georgia, but a border state and this doctor is also Lyme literate. I believe after the initial consult, phone consultations are available for you. |
Debra
9/9/2010
10:46:07 AM
| Just trying to help. Best wishes to you. |
Kathy
9/9/2010
10:19:11 AM
| I will continue to do my best to convince the powers that be of this test an whatever else I need.I am much better and just happy be be where I am right now.As a registered nurse,I do know I have to have a physician order to get any ordered test.I also have to have a willing physician to read and interpet,and treat whatever is found.Without any one of these components,there is nothing acheived.Instead of proceeding head on,I will need to have all of the above in place.I am no longer afraid or panicky.I am simply stating what is already in place and what is not.I have the patience to proceed in an orderly fashion with whatever resources I am able to find.Forgetting about my needs is not an option.I will keep all my facts in mind in all that I do to beat this and I will beat this with God's help. |
Debra
9/9/2010
9:38:13 AM
| Kathy - Important to get the testing done at Metametrix. Forget about everything else for a while. Please. |
Kathy
9/9/2010
9:22:12 AM
| Fungus was identified,bacteria overgrowth,in my last testing. |
Debra
9/9/2010
9:14:02 AM
| I meant - "walking through the amazon if you have to" - anything to get the testing. |
Debra
9/9/2010
9:12:40 AM
| Kathy - Don't tell the new doctor about morgellons or crazy symptoms. Just tell them your lab results. If you have to make up symptoms that an intestinal parasite infection would cause. Tell them you were walking throught the amazon if you have. But make sure they get you the stool parasite/fungus testing. |
Kathy
9/9/2010
9:11:46 AM
| Thanks Debra |
Debra
9/9/2010
9:09:04 AM
| Duluth, Georgia. 800-221-4640 or 770-446-5483
Call them they may give you doctor referrals. |
Kathy
9/9/2010
8:59:13 AM
| Hi,Debra
As I stated earlier,I live in GA.I am in the Savannah area.What city is this lab in?How do I go about finding a Dr. down here?I don't think Pam has one on the list as yet. |
Debra
9/9/2010
8:54:03 AM
| Hi Kathy - Metametrix is a lab in Georgia that does DNA testing on your stool. It identifies what regular testing does not. I had all the same symptoms everyone here has been complaining of. Pamela Crane found the lab to help us. You can contact her or you can do a search yourself and insist that your doctor order the tests for you. If your doctor won't do it find one that will. |
Kathy
9/9/2010
8:46:47 AM
| Just read your post.What parasites are you seeing?Anyone know how to get this testing done,where to go?I also had malabsorption of nutrients.I also became extremely ill and could not eat for a while.MMS is wonderful.I am working again,Thank you God. |
Debra
9/9/2010
8:36:13 AM
| Hi PS - What do you mean by a self-ascribed condition?
Have you been tested by Metametrix? How do you know that morgellons is not really strongyloides? It IS a possibility. There is actually another poster from this site who was diagnosed with the very same parasite. People here should be strongly encouraged to get the DNA testing. This parasite does NOT show up in normal stool testing.
Also - I have been out of the country many times. Although I have read that the south and other warmer U.S. areas now do have cases of infestation of this parasite. I have also read that this parasite can lay low and not cause a problem for many years and then all of a sudden start taking over your body. It can be deadly if not treated soon enough. And it IS very hard to get rid of. So I am not sure what my recovery will be if at all.
But if you are trying to promote this protocol. I can tell you that my lab work showed such poor absorption of nutrients I am surprised that I am able to get through a day. But I am taking all the supplements and the mms and even some of Mr. CS's suggestions. I am sure they are the reason I can function. They ARE very important. BUT PLEASE EVERYONE GET TESTED. Maybe some of you can put a label on it and get the respect and treatment you deserve. |
Debra
9/9/2010
7:43:24 AM
| Thanks PS for your help. |
PS
9/8/2010
2:46:57 AM
| Debra,
Interesting news and good news in a way. It also points out that people in the US can get parasites. Your doctor should be able to treat you successfully and your recovery from Strongyloidiasis is likely to be rapid.
My research indicates that Strongyloides is not the cause of Morgellons. However, because Morgellons is a self ascribed condition, and Strongyloides can have a skin lesions and symptoms similar to Morgellons, it is possible for a person to have Strongyloidiasis and believe it to be Morgellons.
You are now left with two possibilities. First, Strongyloidiasis is the cause of your Morgellons. Second, you have both Morgellons and Strongyloidiasis. The first case would be the better of the two. Your Doctor should be able to treat you effectively and you will be able to move on. The second is the less desirable that is, you still have Morgellons. The good news is getting rid of the Strongyloides should improve your health and aid in your body in fighting off Morgellons.
Either way keep us informed about your progress.
Good luck on your road to wellness.
PS
|
Debra **
9/7/2010
5:58:33 PM | I have been diagnosed with stronglyoides through metametrix. Since many of us have the very same symptoms - I urge you all to get tested immediately. This can be serious and it is hard to get rid of. Look it up, you will be surprised how this parasite's behavior and life cycle fits our symptoms.
This explains why the only thing that seems to control this is mms. You MUST get on mms if you are not already. Do not take anything for 3 days before you get the testing done and then find a good parasitologist.
|
| |
